Apologies, yet again, for the lack of updates. This week has been busy, and I have hit the proverbial wall of exhaustion. Jeremiah is heading off to the lakehouse with my dad for the weekend, so I will be able to get lots of good rest.
In the meantime-- a briefing on the P-nut:
--PICC line is out, meaning there are no more IVs/needles anywhere. All his meds are oral, and the tower of medicine pumps is down to one (for his feeds). All he has are his oxygen cannulae, feeding tube, and air vent tube.
--He is rocking it out on the feeds. They stopped his TPN (intravenous nutrition) and lipid drips when they pulled the PICC, so he is exclusively "breastfed" now. He, just yesterday, started getting condensed feeds of 39 ml/hr for 2 hours, then one hour off. They hope to continue to condense them down until he gets all his milk in about 30 minutes, just like a normal baby. Thus far, no real puke and not too much sign of reflux.
--He likes to desat when he poops.
--We have been downgraded from terror threat level orange (I think we moved from red to orange when he came off the ventilator). I know this because we have been moved across the critical NICU (WE HAVE A WINDOW! Woowoo!) and our nurses are split between two babies. They do not care if Mike and I change diapers or get him out of bed on our own. My heart is happy.
--His oxygen wean, which was at a total standstill for much of the last 2 weeks, has picked up. He hung out at 55% oxygen on a 6L/min flow for a long time, and today he decided it would be a nice time to get almost down to room air (21% oxygen) and a 5L/hr flow. Keep trucking, P-nut!!
--In the greatest news from this week, Parker's echo from Wednesday came back with a note that said "Resolved elevated pulmonary issues." I made Mike ask the neonatologist if that actually meant what I imagined it to, and it does.
PARKER IS PULMONARY HYPERTENSION FREE!
Big, giant praises for this. That was honestly the last of the potentially fatal hurdles that he had to clear, and we are so relieved. Everything else from here on should be fairly straightforward-- SLOW, agonizingly slow, but onward we go. Hopefully to the step-down unit sooner than later.
Thank you all so much for your constant prayers and for checking on us and Parker. I will do better about updating, I promise, and I will post some pictures this weekend.
We love you all!