HOWEVER, I couldn't let today pass unnoticed.
Sweet Rose, aka Jude's mommy, and one of the first ladies who reached out to us after Parker's diagnosis, organized a little get together today for some CDH babies who live not too far from each other. I was so excited to go, to finally get to love on these babies who beat the CDH monster and to hug the necks of the women who understood our journey better than anyone and who stood by our sides through thick and thin. I've often referred to them as "imaginary" friends, because I feel like I know them, but would walk right past them in the grocery store.
Today we finally got to meet, and it was a grand and glorious time-- all of our families (minus just a few) in a beautiful park on a perfect fall day. Hearts full to bursting.
Lily, Bonnie, Clara, Parker, and Jude (in the back)
**picture courtesy of the Hardys**
It's hard to look at that picture and not be amazed, knowing their stories, and knowing the struggles they have all faced. 5 wee ones, with something like 18 months' NICU time between them. 5 strong and healthy babies who all, at various times, were far too close to dying. 5 little people who, for all intents and purposes, are living "normal" lives doing what "normal" babies do.
5 miracles.
I mentioned it before, but I think it's worth mentioning again, the miracle isn't that these babies survived. Or even that they were born. The miracle is that they were formed, albeit imperfectly... Imperfect by human standards, but designed exactly the way God intended them to be.
Looking at those faces above, I think you'd be hard pressed to find any of us who'd change a thing!
Thank You, Thank You, THANK YOU for this most special post. The California grandmother/great grandmother has followed all of these babies since birth and sent many, many prayers and white light to all of them. The picture actually made me cry. And, I promise to stop whinnnnnning for now!! Gosh, you guys are all so, so very special.
ReplyDeleteNO way. Some of my favorite CDH momma's all in one room. We all followed each other's stories and prayed our guts out for each other. What a cherished time. Wish I was there to see these miracles. I didn't know you all lived so close together. Give each of them hugs. How much encouragement they gave us through our time with Esther without knowing it!!! Big hugs to you guys!!!
ReplyDeleteRhonda and Jason Holtrop
Truly amazing glorious picture! I've blog followed most of those cuties but my mouth dropped opened to see them all together!!! What a true blessing!
ReplyDeleteAbby....
ReplyDeleteThank-you for commenting on my Blog!! I truly appreciated it!! ;)
I do not have time to read/comment on this post. So expect another later!! I really should be spending time with Rose before getting ready for church!! However. I must note that I "know" nearly every one of those fellow Kindred Spirit CDH Friends in that picture!! Neat!! ;-D
--Raelyn
Abby....
ReplyDeleteAlright, now I have read this post!! ;)
"The miracle isn't that these babies survived. Or even that they were born. The miracle is that they were formed, albeit imperfectly... Imperfect by human standards, but designed exactly the way God intended them to be.". Very good. Very, very, very good.... ;-D
--Raelyn
I'm so happy (and admittedly, a bit jealous) that you were able to have a CDH reunion. If only I lived closer, I would have crashed your party. It's so nice to see so many miracles together.
ReplyDeleteHeaven's door flew open wide to let 5 precious little ones and their sweet moms have this glorious reunion. I know God smiled, as did all of us who read this blog. Many happy wishes and continued prayers for all of you. This truly has made my day!
ReplyDeleteAbby....
ReplyDeleteIt has been one month since you last posted on this Blog!! I am missing Parker, my Kindred Spirit CDH Buddy!! How is he doing? I am also missing Jeremiah!! And you, Friend!! ;)
--Raelyn